“Solve ME/CFS Initiative is proud to present the 2nd Annual ME/CFS Advocacy Week. This monumental advocacy effort will contain actions for every energy level and ability to join, from a social media post to meeting with Congressional leaders face to face in Washington DC”
2ND ANNUAL ME/CFS ADVOCACY WEEK >>>
“Epic day on the Hill advocating for #mecfs awareness, research and FY-19 funding (that’s short for fiscal year 2019. One of the many things I learned today. Here we are at our first meeting at Senator @kirstengillibrand office. I was so impressed by the staffers we met who were warm, kind and empathetic. We are plugging away and have gained momentum. Fantastic groups of patients and advocates had over 120 meetings today! #friendsofanneberry”
© Amy Carlson; Instagram
“The thrill was mine. I am delighted to advocate for this devastatingly underfunded illness that took my friend #anneberry and it is my honor to advocate-for all those who cannot because of the toll of #MECFS”
© Amy Carlson; Twitter
“The thrill was mine. I am delighted to advocate for this devastatingly underfunded illness that took my friend #anneberry and it is my honor to advocate-for all those who cannot because of the toll of #MECFS”
© Amy Carlson; Twitter
“Glenbard West class of ‘86 representing on the HILL today!! So great to see you Scott Hunt and Rob Waldeck thanks for coming out.
#MEAction
#friendsofanneberry”
Connie F.Bane
