Todays demonstrations will occur in cities world-wide to focus attention on a neglected, devastating disease — Myalgic Encephalomyelitis (ME), an illness that also goes by the misleading name Chronic Fatigue Syndrome (CFS). At this event, the most powerful demonstrators will be those who could not attend — the bedridden and housebound patients.
Text: Connie F. Bane
Amy Carlson:
“Today we stood for those who cannot. #millionmissing #mecfs the time is now for research, care and treatment. On Tuesday I’ll be going to #DC to lobby Congress for funding. In memory of #AnneBerry my beloved friend lost to this terrible disease.”
Photos by Amy Carlson